Archive for the ‘ostomy support groups & meetings’ Category

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Ostomy Lifestyle Volunteer of the Year 2009

20/Jan/2010

Robert Azevedo Gilbert, the Chairman and founder of Inside Out Stoma Support Group was the very worthy winner of our Volunteer of the Year Award, for his tireless efforts and organising abilities at the support group.

Ostomy Lifestyle Volunteer of the Year 2009

IOSSG is based at St Marks & Northwick Park Hospital, and celebrated its 10th anniversary in 2009.  As well as holding regular meetings and information days in the local area Bob campaigns nationally on behalf of stoma patients, and actively works with health authorities on relevant issues. (more…)

Posted in Charity, Ostomy Awards, ostomy support groups & meetings | Leave a Comment »

Ostomy Lifestyle Awards Shortlist

26/Nov/2009

Good news – we have announced the shortlist for the Ostomy Lifestyle Awards, and there are loads of fantastic nominations!

It was really enjoyable judging the different categories, to see so many positive things going on and people keen to recognise those that have made a difference.

Here’s the final shortlist: (more…)

Posted in Colostomy, Ileostomy, Urostomy, ostomy support groups & meetings | Leave a Comment »

Our new Patient Panel – getting new information sheets in the pipeline

05/Nov/2009

Thanks to a grant from the Big Lottery fund, we are now able to expand and develop our range of patient information sheets.  To make sure we don’t simply duplicate information that is already available, or produce material on topics that don’t really affect people, we are consulting with the group we aim to reach.

We have gathered together a Patient Panel who will assist us by completing online surveys and reviewing literature.   The Panel come from all walks of life and have had very different experiences of living with a stoma, and have come to us through stoma care nurses, social networking, and Ostomy News.  Their insights will ensure that we address those key issues that people face before and after stoma surgery. (more…)

Posted in Charity, Colostomy, Ileostomy, ostomy support groups & meetings, Patient Panel, Training, Urostomy | Leave a Comment »

Politics

27/Oct/2009

I’ve got to be honest, since we set up the charity two years ago we haven’t spent much time on ‘politics’.  There seems to be an expectation that we should be out wining & dining companies, or other support organisations, or trading ideas and favours to stay popular with our peers.

Trouble is, we just don’t have the time.  We’re focused on delivering help and support to thousands of people, and improving opportunities to receive information about stoma surgery.  We don’t have the resources to do anything that isn’t achieving our purpose. (more…)

Posted in Charity, Fundraising, ostomy support groups & meetings, Uncategorized | Leave a Comment »

Ostomy Awards 2009

29/Sep/2009

Ostomy Awards 2009

I’m really pleased to see all of the great nominations people are sending in for the Ostomy Lifestyle Awards.  It’s a real pleasure to read the amazing stories and the many positive accounts of the great work going on at the moment.

These awards celebrate the people and organisations that promote positivity and improve the quality of life of people affected by colostomy, ileostomy and urostomy surgery, as well as the myriad of associated conditions that get talked about even less.

There’s still time to make a nomination (closing date is Friday 16th October), the judges will meet on 30th October, and everyone nominated will be informed in November.  The categories are:

This is a great chance to publicly honour the individuals and organisations that make a real difference to people affected by stoma surgery, so if you know someone that desrves an award, get in touch soon!

Posted in Uncategorized, Charity, Colostomy, Ileostomy, Urostomy, Fundraising, ostomy support groups & meetings | Leave a Comment »

Ostomy Awareness Month (in West Virginia)

25/Aug/2009

Well that was strange – got a message letting me know that August is officially “Ostomy Awareness Month” in West Virginia, US, which appears to be in association with Ostomy Lifestyle!

It all sounded quite interesting to start with; it’s been officially announced by the Governor and looks to gain a fair amount of publicity for the cause.  Even better is the fact that Doug Milgram, President of the Charleston Area Ostomy Association, seems level headed and keen to promote a positive image for the subject and inform the public of the surprising number of people that have stoma surgery.  “Walk through the mall and every dozen or so people you pass one is an ostomate,” said Milgram on WOWK-TV.

I got a bit of a shock though, to see our very own blue & red branding all over the TV news story promoting the event, and in the video with interviews from the organisers. (more…)

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