Archive for the ‘Fundraising’ Category

Ostomy Lifestyle Underwear and Swimwear Show 2011

07/Nov/2011

One of the most common issues we help people overcome, before and after surgery, is that of a changed body image.  Stoma surgery can result in abdominal scarring and means wearing a bag, not exactly attractive right? Well, our Underwear & Swimwear show proves otherwise.

This is only the second time we have produced this event. The first Underwear & Swimwear Show was at Café de Paris in London’s Piccadilly and was an immediate internet hit with over 20,000 people watching the show online and the film being used to inspire patients all over the world.

This year the format remained the same, but was bigger and bolder with 14 models from a wide range of backgrounds and experiences stepping out in front of the cameras, and the crowds, in a variety of attractive and sporty outfits. Once again the show included garments from mSee all of the volunteers on the catwalkany high street stores and boutique designers, as well as some created especially for people with an ostomy.

Our aim for the event is to raise the profile of ostomy surgery in a positive way, to help tackle the fear and stigma before the operation, stopping it take root and impairing patients’ quality of life before they even have the surgery.

When someone finds out they are going to have stoma surgery the first place most people turn to is the internet, which can be the worst introduction to the subject for a patient, with images of very ill, emaciated patients covered in staples and surgical wounds, and usually a clear post-operative stoma bag with its contents in full view. Add to this the myriad of forums and websites which may be cathartic for the authors but often very scary to vulnerable patients awaiting surgery.

Our show, and the associated media campaign and Facebook traffic, provides much more positive images and personal stories from people whose voices wouldn’t normally be heard.

Deborah volunteered to model in the show to help people overcome their fears and have surgery before it is too late: “I lost out on three years of my life with ulcerative colitis.  If I had known the quality of life that I would have gained by having a stoma I wouldn’t have wasted any time”

Hayley-Jade had her colostomy after her bowel perforated during a caesarean section 3 years ago: “I had never even heard of a colostomy before. I came home from hospital on Christmas Eve so between that and the fact that I had a new born baby son, with cerebral palsy, the stoma had to fit in around me, after all this is my ‘new normal’ so I just decided to get on with it.

My body image has definitely changed since having a stoma. In some ways I’m less confident as my tummy area is covered in scars from the operations which I don’t like, but in other ways I’m more confident, I now have a greater appreciation for bits of my body that I never used to like. My partner says that he doesn’t even notice the bag anymore and I’m happy to go on the beach wearing a bikini now, which I wouldn’t have done before!

Being involved in the show is my way of saying to the world – ‘I’m happy with who I am’ and it’s a great opportunity to explain more about my colostomy to my friends as I think they’ve all been a bit scared to ask before!”

Rosemary has modelled in both our shows and is becoming something of an ambassador for the message it sends: “Being part of the show changed my life, and it can change other people’s, whatever their experiences.”

Ostomy Lifestyle’s support services are here to help ensure people affected by stoma surgery are able to lead a full and active life by providing them with knowledge and inspiration. Our models are living proof that beauty comes in many forms and a positive attitude is the most beautiful feature of all.

Video interviews with all of the models are on the Ostomy Lifestyle website, and photos and films of the event itself are going live this winter.

Underwear & Swimwear Show is NEXT WEEK!

28/Oct/2011

Well what a busy, busy couple of weeks.  It’s usually hard enough to stay up to date with everything happening at the charity but of course right now we’re in the throes of organising our next (world famous) Underwear & Swimwear Show.

This years event is bigger, better, and more wide reaching than before; considering over 20,000 people watched the last one that’s quite something – if you haven’t watched it already do so now:

http://ostomylifestyle.org/content/underwear-and-swimwear-show-2009

To be honest it’s been a rocky road, with only a small team in the office an event of this scale is a major commitment for the charity, both financially (we hope to break even on ticket sales and other fundraising) and emotionally (I think everyone has come pretty close to a nervous breakdown dealing with every type of stress from ticket sales and corporate support, to filming interviews with the models and organising the stylists and photography).

The concept has proved to be controversial, there have been a couple of raised eyebrows and even a letter concerned about using sexuality and nudity for a charity.  The National Secretary of another ostomy charity even helps prove how groundbreaking it is by describing the event as ‘disgusting’.

Detractors are in a very small minority however; this event has captured the imagination and enthusiasm of thousands of people who want to show the world that having a stoma is not a barrier to leading a full and active life, and to push back against the negative images that are often painted of body image by people who do not understand what an ostomy is, or what it means to the 22,000 people having the surgery every year in the UK.

I’m looking forward to seeing many friends of the charity, old and new, on Wednesday night. If you don’t have tickets I’m afraid all the VIP seats have sold out, but there are still free ‘Show Only’ tickets available on the website.

The new Health Lottery – a threat to charity income?

28/Sep/2011

Richard Desmond (owner of the Daily Express) has launched his “Health Lottery” to compete with the National Lottery. The news on my way to work today was all over it and sounding very positive, and on the face of it a very nice thing to do – who wouldn’t want to take part in a lottery scheme that provides donations to charity?  Well anyone that already plays the National Lottery or any of the charity organised lotteries such as Hospice Lotteries or Unity Lottery for a start which donate more than the Health Lottery.

The Health Lottery gives 20p in the pound to health charities, whilst the National Lottery gives 28p all types of charity.  Our charity has achieved Big Lottery funding to expand our Helpline services and training opportunities throughout England, helping thousands of people over the next four years.

The Big Lottery Fund has an extremely rigorous process for applying for funds, and it is very competitive meaning only the best cases are supported.  I wonder if a competitor will be able to apply the same level of accountability and provide the same level of trust…

If a donor wants to guarantee how their lottery spending is used thay can take part in much more equitable schemes run by the charities themselves – for instance we have our own Unity Lottery in which 50% of proceeds go straight to Ostomy Lifestyle.

In its name the comparison with the much publicised healthcare ‘postcode lottery’ is just too obvious, and I feel trying to undermine existing initiatives will only damage charity income across the sector, and sounds more like a PR stunt than anything else.

2011 Underwear & Swimwear Show tickets

29/Aug/2011

Very, very exciting time now…. The tickets for this year’s Underwear & Swimwear Show will be going live this week, as well as excusive interviews with the models so you can get to know them a little before the main event!

Last time we did this we had an amazing response with over 20,000 people watching online via Youtube, Facebook and our own website – see for yourself here

Feedback from last time round was that although everyone had a great time, it would have been nice to see more patients at the event.  As they are the people we started the show for we have worked hard to make tickets availableto everyone that needs them, regardless of financial situation.

We are working with several companies who have block purchased tickets to give away either free or at a heavy discount, so far including Salts Healthcare (VIP sponsor), OstoMart, Peak Medical, and CliniMed.

Unfortunately we only have a limited number of subsidised tickets, but we hope to get more companies involved in bringing patients along – if you or your company is interested in helping subsidise patients tickets please call me in the office on 0118 324 0069 asap, as we already have a waiting list of over 300 guests!

Feeling sore today…

12/Jul/2011

I’m writing this lying down, trying not to move for fear of hurting my back…

Having spent Sunday running round London at the Asics British 10k, I shouldn’t be surprised that I’m feeling a bit sore – but having raised £545 through my JustGiving page makes the pain a little more bearable.

It really was a fun event; there were nine of us out running for Ostomy Lifestyle, from far across the UK, and even a few from the Netherlands.  This being my first running event I can see why so many people take part, especially for fundraising.  Once I’m back on my feet I think I could be tempted to do another one, or maybe something a little more challenging.

I’m personally pretty pleased with my finish time, a tad over my target 50 minutes, even though my back injury put me off training for a fortnight before the event I can’t help feeling I would have shaved a few minutes off if I hadn’t been struggling to overtake about 25,000 runners & walkers on the way!

Thank you to everyone that donated, as I wash down an analgesic I feel I’ve earnt every penny!

British 10k London Run

05/Jul/2011

Oops, in a brash moment earlier this year I signed up for the Asics London 10k run, and the reality is just starting to sink in….

Although I’m not as fit as I used to be (in my youth!) and carrying some excess weight I reckon I’m in with a chance of doing it within 50mins, but really I’m doing it to raise some money for charity.
My target:  Ostomy Lifestyle has recently kicked off a national project funded by the Big Lottery Fund, providing workshops for people to better understand their surgery and feel more confident after having a stoma.
These workshops are happening all over the country but as many of our beneficiaries may suffer with hearing empediments I would like to raise enough sponsorship to purchase sound equipment to use wherever we go.

Please do visit my fundraising page: justgiving.com/Neil-Basil

Big thanks to my many friends and family that have donated so far!

Big Lottery Funding

08/Apr/2011

At last we can go live with the very exciting news that we have been succesful in achieving a National Lottery grant via the Big Lottery Fund!

It’s good timing; Ostomy Lifestyle is still a very young charity (3 years) but has rapidly filled the void between statutory healthcare services and traditional support groups and associations.  By consistently delivering advice, information and support  to people affected by stoma surgery, and training others to do the same we have helped many thousands of patients to lead more positive lives, but this has also highlighted the need for more work to be done.

It’s felt like a long slog at times, and with an annual income of £75,000 there are peers of mine in other charities with bigger salaries than our entire budget, yet through the hard work of volunteers and staff we are making progress and this 4 year funding is pivotal in expanding our services, providing:

  • A stoma care nurse to provide one-to-one support and assist the development of more printed and online information
  • A calendar of patient workshops, on a range of topics, across the country to help people overcome their own stoma related problems and feel more confident about living with a stoma
  • A new range of support group organiser training; helping new and existing groups improve their ability to provide support, information and advice

We will take an opportunity to invite you all to a celebration launch party very soon… watch this space!

Business Charity Awards

10/Feb/2011

The Business Charity Awards nominations close today, which will recognise partnerships between businesses and charities in the UK.  Great news – or so I thought…

On the face of it this is exactly the sort of thing that can help us acknowledge the amazing help and support we have received from B2B marketing agency Onefish Twofish, who have provided in-kind support from corporate videos to our excellent new website and Directory.

But the entry fee is £395 + VAT (nearly £500 net), an extraordinary sum which I cannot justify from charity funds, and by the same token I am not going to ask Onefish Twofish, who have already done so much for us, to pay several hundred pounds for something that won’t help our benficiaries.

Once again a scheme that bigs up the massive companies supporting the Megacharities, and completely excludes small, innovative charities and creative donors.  With big name charity sector partners such as Charities Aid Foundation and Third Sector behind it, you’d expect it to be better thought out especially as those entering will also be buying the top price dinner tickets.

Interestingly the entry fee was previously advertised at £450+VAT…

Mercy’s video & intro to OstomyAid

30/Nov/2010

Here’s a short film all about Mercy, and Heidi Yssennagger‘s work creating her for OstomyAid.  This was filmed by Tim Bedingfield on the same day that first year Fashion & Marketing students at Canterbury College carried out the final dressing of Mercy, using entirely the waste NHS bedding they designed and printed themselves.

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Mercy – OstomyAid Ambassador

19/Nov/2010

It seems the last few weeks have been a blur of the most tedious elements of running a small charity – accounts, HR, White Paper responses, governance skills audits and repairing a Sage Line 50 nightmare to name a few…

OstomyAid new Ambassador!Anyway, that all changed yesterday when I was privileged to be involved in the dressing of our newest volunteer – Mercy.

Mercy is the creation of Heidi Yssennagger, and will be the ambassador for our new project – OstomyAid - which will provide essential medical appliances to victims of poverty, disease and trauma in countries in desperate need of support.

Made from spare ostomy appliances – seconds from the Dansac factory – and dressed in waste NHS bedding sheets, Mercy embodies everything about OstomyAid, from reducing the waste of appliances in the UK, to the patterns in her clothes inspired by the bowel and stoma, designed, printed, and clothed by the students of Canterbury College.  Additional thanks are due to Dansac for supporting Heidi with the cost of materials (paint etc).

Heidi has created Mercy as a typical patient of the Aaddis Ababa Fistula Hospital in Ethiopia, where women are treated for injuries caused in childbirth which leave them outcast and alone.  She is a symbol of hope for the future, and I am proud that Heidi has extended her talents to Ostomy Lifestyle in support of this project.

Mercy’s inaugral appearance will be at our first OstomyAid fundraiser at Fortnum & Masons on the 2nd December.  And yes before you ask – she does have a stoma and is wearing a real (surplus) bag – I’ve seen it!

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