Archive for the ‘Colostomy’ Category

Ostomy Lifestyle Underwear and Swimwear Show 2011

07/Nov/2011

One of the most common issues we help people overcome, before and after surgery, is that of a changed body image.  Stoma surgery can result in abdominal scarring and means wearing a bag, not exactly attractive right? Well, our Underwear & Swimwear show proves otherwise.

This is only the second time we have produced this event. The first Underwear & Swimwear Show was at Café de Paris in London’s Piccadilly and was an immediate internet hit with over 20,000 people watching the show online and the film being used to inspire patients all over the world.

This year the format remained the same, but was bigger and bolder with 14 models from a wide range of backgrounds and experiences stepping out in front of the cameras, and the crowds, in a variety of attractive and sporty outfits. Once again the show included garments from mSee all of the volunteers on the catwalkany high street stores and boutique designers, as well as some created especially for people with an ostomy.

Our aim for the event is to raise the profile of ostomy surgery in a positive way, to help tackle the fear and stigma before the operation, stopping it take root and impairing patients’ quality of life before they even have the surgery.

When someone finds out they are going to have stoma surgery the first place most people turn to is the internet, which can be the worst introduction to the subject for a patient, with images of very ill, emaciated patients covered in staples and surgical wounds, and usually a clear post-operative stoma bag with its contents in full view. Add to this the myriad of forums and websites which may be cathartic for the authors but often very scary to vulnerable patients awaiting surgery.

Our show, and the associated media campaign and Facebook traffic, provides much more positive images and personal stories from people whose voices wouldn’t normally be heard.

Deborah volunteered to model in the show to help people overcome their fears and have surgery before it is too late: “I lost out on three years of my life with ulcerative colitis.  If I had known the quality of life that I would have gained by having a stoma I wouldn’t have wasted any time”

Hayley-Jade had her colostomy after her bowel perforated during a caesarean section 3 years ago: “I had never even heard of a colostomy before. I came home from hospital on Christmas Eve so between that and the fact that I had a new born baby son, with cerebral palsy, the stoma had to fit in around me, after all this is my ‘new normal’ so I just decided to get on with it.

My body image has definitely changed since having a stoma. In some ways I’m less confident as my tummy area is covered in scars from the operations which I don’t like, but in other ways I’m more confident, I now have a greater appreciation for bits of my body that I never used to like. My partner says that he doesn’t even notice the bag anymore and I’m happy to go on the beach wearing a bikini now, which I wouldn’t have done before!

Being involved in the show is my way of saying to the world – ‘I’m happy with who I am’ and it’s a great opportunity to explain more about my colostomy to my friends as I think they’ve all been a bit scared to ask before!”

Rosemary has modelled in both our shows and is becoming something of an ambassador for the message it sends: “Being part of the show changed my life, and it can change other people’s, whatever their experiences.”

Ostomy Lifestyle’s support services are here to help ensure people affected by stoma surgery are able to lead a full and active life by providing them with knowledge and inspiration. Our models are living proof that beauty comes in many forms and a positive attitude is the most beautiful feature of all.

Video interviews with all of the models are on the Ostomy Lifestyle website, and photos and films of the event itself are going live this winter.

Underwear & Swimwear Show is NEXT WEEK!

28/Oct/2011

Well what a busy, busy couple of weeks.  It’s usually hard enough to stay up to date with everything happening at the charity but of course right now we’re in the throes of organising our next (world famous) Underwear & Swimwear Show.

This years event is bigger, better, and more wide reaching than before; considering over 20,000 people watched the last one that’s quite something – if you haven’t watched it already do so now:

http://ostomylifestyle.org/content/underwear-and-swimwear-show-2009

To be honest it’s been a rocky road, with only a small team in the office an event of this scale is a major commitment for the charity, both financially (we hope to break even on ticket sales and other fundraising) and emotionally (I think everyone has come pretty close to a nervous breakdown dealing with every type of stress from ticket sales and corporate support, to filming interviews with the models and organising the stylists and photography).

The concept has proved to be controversial, there have been a couple of raised eyebrows and even a letter concerned about using sexuality and nudity for a charity.  The National Secretary of another ostomy charity even helps prove how groundbreaking it is by describing the event as ‘disgusting’.

Detractors are in a very small minority however; this event has captured the imagination and enthusiasm of thousands of people who want to show the world that having a stoma is not a barrier to leading a full and active life, and to push back against the negative images that are often painted of body image by people who do not understand what an ostomy is, or what it means to the 22,000 people having the surgery every year in the UK.

I’m looking forward to seeing many friends of the charity, old and new, on Wednesday night. If you don’t have tickets I’m afraid all the VIP seats have sold out, but there are still free ‘Show Only’ tickets available on the website.

2011 Underwear & Swimwear Show tickets

29/Aug/2011

Very, very exciting time now…. The tickets for this year’s Underwear & Swimwear Show will be going live this week, as well as excusive interviews with the models so you can get to know them a little before the main event!

Last time we did this we had an amazing response with over 20,000 people watching online via Youtube, Facebook and our own website – see for yourself here

Feedback from last time round was that although everyone had a great time, it would have been nice to see more patients at the event.  As they are the people we started the show for we have worked hard to make tickets availableto everyone that needs them, regardless of financial situation.

We are working with several companies who have block purchased tickets to give away either free or at a heavy discount, so far including Salts Healthcare (VIP sponsor), OstoMart, Peak Medical, and CliniMed.

Unfortunately we only have a limited number of subsidised tickets, but we hope to get more companies involved in bringing patients along – if you or your company is interested in helping subsidise patients tickets please call me in the office on 0118 324 0069 asap, as we already have a waiting list of over 300 guests!

Patient Workshops

08/Feb/2011

An enjoyable evening spent trying a new method of delivering our Patient Workshops in the community.  We didn’t travel far to do it – a few hundred yards round the corner at a local hall.

I really enjoy these sorts of events; they remind you why you do this job when you’re face-to-face with people who:

  • Know very little about their own digestive and urinary system
  • Have little contact with support networks
  • Do not realise how many other people share the same condition in their local area

And after the workshop:

  • Have had an interesting, educational and fun evening
  • Feel more comfortable about their own body
  • Better understand the surgery they had

The workshops are always really well received at larger events and open days, but this is the first time running it as the sole focus of an event, partly because it is hard to find the funding for travel, venues etc, but we wanted to make it more accessible to people that might not make it to the bigger events.

Nick Howard at Convatec helped out by bringing sandwiches and refreshments, and the feedback was excellent so we hope to deliver more of these in different parts of the country very soon.

Community Based Support Special Interest Group – update

15/Apr/2010

We recently held the first meeting of a Special Interest Group, to look for ways to improve Community Based Support (CBS) opportunties for people affected by stoma surgery.  There are many different types of CBS; for example local support group meetings, hospital open days, information days, or other events.

The premise of the meeting was that more people could benefit from CBS initiatives in their local area, and that the multiple stakeholders i.e. local support groups, nurses, companies and national patient organisations, should be able to plan collaborative methods of achieving this.

To start the group off 22 people involved in setting up, administering or promoting such activities discussed ideas to raise awareness of CBS activities, increase attendance, and make them more inclusive to marginalised groups.

The notes from the meeting can be downloaded here: SIG meeting flipchart notes

We will be exploring the ideas raised and seeking solutions to the problems identified; if anyone else would like to take part or can volunteer to help solve these problems – please get in touch!

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Community Based Support Special Interest Group meeting

25/Feb/2010

On Wednesday 17th March we will host a Special Interest Group meeting to discuss how more people affected by stoma surgery could benefit from community based support initiatives such as local support group meetings, hospital open days, and information days.

These events give people access to a wide range of support, advice and information in their local area, but often they do not know they exist or decide not to get involved.

This meeting will involve various stakeholders; if you have an interest in organising any type of local support group or open day then you can find more details by downloading the preparatory note.  If you would like to attend it is vital you let us know as space is limited.  Download Preparatory note

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Anatomical Apron teaching video – What is a colostomy?

19/Feb/2010

For anyone that has purchased an Anatomical Apron for teaching about stoma surgery, this video is an excellent introduction to explaining a colostomy and how it is formed:

Joy’s also produced some notes on her website to help you get started:
Sigmoid Colostomy

If you don’t have an Apron and would like to order one in the UK, call Helen on 0118 324 0069 or return this Order form

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Thanks for the donations – please keep them coming!

17/Feb/2010

I’d just like to write a short note to say thank you to all of the people that have donated following our recent Ostomy News mailing; this helps to make sure we can keep sending Ostomy News on a regular basis.

Ever since the charity started we’ve believed that our services, especially the Helpline, should be made free of charge for anyone affected by stoma surgery to make sure no one misses out on help and support when they need it most.

These services have become extremely busy and to make sure we can answer everyone’s call we need to keep raising money.  If anyone Donate through CAFOnlinecan help by making a donation you can do it online through the Charities Aid Foundation on the red button:

Thanks for all the support, Neil

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C4′s Embarassing Bodies features a colostomy!

03/Feb/2010

I’m very pleased with that; the first episode of Channel 4′s Embarassing Bodies series has just aired, including a short feature about living with a colostomy.  It’s available to watch online here

I have to be honest, when the producers of Embarassing Bodies first got in touch, our reaction was mixed.  Yes this was a great opportunity to get the topic on primetime television, but in our experience most of our interaction with the press is responding to negative and misleading stories, and with a name like Embarassing Bodies what could we expect!

Vanessa has a colostomy bag, and she gave a postive and encouraging view of what it’s like living with any type of ostomy, which makes a refreshing change.  Considering 22,000 people every year have surgery for a colostomy, ileostomy, or urostomy it’s about time the media gave a bit more positive coverage to this very common condition.  It was also helpful to see someone talking openly about their surgery who isn’t the traditional elderly stereotype. (more…)

Dansac Foundation donates to Ostomy Lifestyle

03/Feb/2010

We are very pleased that Ostomy Lifestyle has been selected as one of the Dansac Foundation’s project recipients, providing financial support to maintain our Helpline services for ostomy patients.

The purpose of the Dansac Foundation is to increase the quality of daily life for those living with a stoma, supporting projects such as physical and psychological therapy, recreation, and development projects e.g. QOL projects, follow up and counselling projects, information projects.

Vigdis Hannestad (Global Clinical Services Manager) said “The core values of Ostomy Lifestyle go hand in hand with the aims of the Dansac Foundation”

For more information about Dansac Foundation see their website www.dansacfoundation.com

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