Archive for the ‘Charity’ Category

Business Charity Awards

10/Feb/2011

The Business Charity Awards nominations close today, which will recognise partnerships between businesses and charities in the UK.  Great news – or so I thought…

On the face of it this is exactly the sort of thing that can help us acknowledge the amazing help and support we have received from B2B marketing agency Onefish Twofish, who have provided in-kind support from corporate videos to our excellent new website and Directory.

But the entry fee is £395 + VAT (nearly £500 net), an extraordinary sum which I cannot justify from charity funds, and by the same token I am not going to ask Onefish Twofish, who have already done so much for us, to pay several hundred pounds for something that won’t help our benficiaries.

Once again a scheme that bigs up the massive companies supporting the Megacharities, and completely excludes small, innovative charities and creative donors.  With big name charity sector partners such as Charities Aid Foundation and Third Sector behind it, you’d expect it to be better thought out especially as those entering will also be buying the top price dinner tickets.

Interestingly the entry fee was previously advertised at £450+VAT…

Patient Workshops

08/Feb/2011

An enjoyable evening spent trying a new method of delivering our Patient Workshops in the community.  We didn’t travel far to do it – a few hundred yards round the corner at a local hall.

I really enjoy these sorts of events; they remind you why you do this job when you’re face-to-face with people who:

  • Know very little about their own digestive and urinary system
  • Have little contact with support networks
  • Do not realise how many other people share the same condition in their local area

And after the workshop:

  • Have had an interesting, educational and fun evening
  • Feel more comfortable about their own body
  • Better understand the surgery they had

The workshops are always really well received at larger events and open days, but this is the first time running it as the sole focus of an event, partly because it is hard to find the funding for travel, venues etc, but we wanted to make it more accessible to people that might not make it to the bigger events.

Nick Howard at Convatec helped out by bringing sandwiches and refreshments, and the feedback was excellent so we hope to deliver more of these in different parts of the country very soon.

Mercy – OstomyAid Ambassador

19/Nov/2010

It seems the last few weeks have been a blur of the most tedious elements of running a small charity – accounts, HR, White Paper responses, governance skills audits and repairing a Sage Line 50 nightmare to name a few…

OstomyAid new Ambassador!Anyway, that all changed yesterday when I was privileged to be involved in the dressing of our newest volunteer – Mercy.

Mercy is the creation of Heidi Yssennagger, and will be the ambassador for our new project – OstomyAid - which will provide essential medical appliances to victims of poverty, disease and trauma in countries in desperate need of support.

Made from spare ostomy appliances – seconds from the Dansac factory – and dressed in waste NHS bedding sheets, Mercy embodies everything about OstomyAid, from reducing the waste of appliances in the UK, to the patterns in her clothes inspired by the bowel and stoma, designed, printed, and clothed by the students of Canterbury College.  Additional thanks are due to Dansac for supporting Heidi with the cost of materials (paint etc).

Heidi has created Mercy as a typical patient of the Aaddis Ababa Fistula Hospital in Ethiopia, where women are treated for injuries caused in childbirth which leave them outcast and alone.  She is a symbol of hope for the future, and I am proud that Heidi has extended her talents to Ostomy Lifestyle in support of this project.

Mercy’s inaugral appearance will be at our first OstomyAid fundraiser at Fortnum & Masons on the 2nd December.  And yes before you ask – she does have a stoma and is wearing a real (surplus) bag – I’ve seen it!

Share

Unity Lottery vs National Lottery

28/Aug/2010

You might have seen we’ve recently set up our Unity Lottery, but what makes it so different?

Well, for every £1 entry, Ostomy Lifestyle receives 50p.  Compare this to only 28p to charity from each National Lottery ticket, and that will be to a very wide range of causes especially the arts, heritage, and sport.  With the 2012 Olympics approaching, expect to see much of this cash eaten up supporting London and the games.

By playing Unity Lottery, you can choose exactly where your money is spent, and nearly double the charity donation in the process.

There’s still a 1 in 63 chance of winning a prize, which is close to the National lottery’s 1 in 54:

  • 6 numbers wins £25,000
  • 5 numbers wins £1,000
  • 4 numbers wins £25
  • 3 numbers wins £5

Your £1 per week gives you a six digit Unity Lottery number, which will remain yours for as long as you play.

To get started, see our website or download an entry form.  Good luck!

UnLtd Spring Award

28/Jun/2010

Last week brought a very special celebration, as I’ve just won an UnLtd social entrepreneurship award.

This award has a financial element, which at such a time of growth and uncertainty is an immense help to me personally, but more importantly it also provides me with a tailored package of business support.  This will support my work establishing more creative methods for dealing with the challenges we face, especially improving patient care and generating sustainable support services for people affected by stoma surgery.

I’m very proud to have this award, and feel I am in very good company; at the event last week I met UnLtd Award winners past and present, and they are clearly achieving real social change in some of the most innovative ways.  I look forward to helping change the world with them.

Incidentally, the venue for the dinner was the Michelin recommended Hoxton Apprentice, which if you haven’t heard of or visited – do go there.  Owned by the charity Training For Life, it is a social enterprise that creates opportunities for people to get their lives back on track and learn skills that will secure them employment, at the same time as serving excellent food.  An excellent example for the rest of us.

Share

Time off

28/Jun/2010

I’ve lots to report over the next few days, as there’s been all sorts happening at Ostomy Lifestyle recently, and also for me personally, notably the birth of my son.  He’s now seven weeks old but growing very very fast, and already has a look of determination about him that makes us expect to be kept on our toes for the next few years…

With such a small team it can really knock us back when anyone is on holiday, so the last few weeks have been testing for everyone.  My paternity leave fell at an unusually busy time for patient workshops and regional open days, so what with developing the new ostomylifestyle.org website and a steady rise in demand for the Helpline, it is a wonder that anyone can ever take time off!

We do not expect the situation to get any easier, and for many of us that is the nature of charity work – the  busier we get, the more thinly spread our resources – but this shouldn’t have to be the case so we are reconsidering the impact of all of our work, and focussing on those things that deliver the most, even when times are hard.

Joint Manifesto for Trust

20/Apr/2010

Ostomy Lifestyle and 30 patient support groups and charities have joined with the Patients Association Network for Patients to release a Joint Manifesto, to ensure the voices of patients and carers are at the “heart of the debate” on the future of health and social care during the general election.

Under the theme of Trust, the Manifesto consists of three points demanding clarity from politicians, transparency from the NHS and support from GPs in accessing help from groups like ours. :

  1. Encouraging GPs to ensure their patients are aware of what patient support groups they could seek help from for information & support relating to their conditions.
  2. Introducing a requirement for national announcements on funding to be supported by a framework to ensure funding is spent locally as announced/intended.
  3. A request for more clarity and detail from political parties on how they plan to fund health and social care for the duration of the next Government and beyond. (more…)

Small is beautiful

16/Apr/2010

Smaller charities are less wasteful and have a better understanding of their beneficiaries, according to a public poll.  This is good news for us, and I’d certainly agree with the findings of research organisation nfpSynergy, who surveyed 1,000 people last November.

51% of respondents thought charities with an income of over £10m were wasteful in how they spend their money, whilst only 6% thought charities with less than £1m income were wasteful.  £1m – £10m charities didn’t do too badly; 17% thought they were wasteful in their spending.  I’m very pleased to hear the public recognise the value of small charities, although we have a small income we still have to tackle serious challenges, and as such have to push our income and resources to the limits to deliver results.

65% of the general public recognise that small charities are good at understanding the needs of their beneficiaries, and 70% said they were friendly in their approach.  A good result, but also a reminder that we need to consult with our service users often to maintain this understanding and approachability. (more…)

Community Based Support Special Interest Group – update

15/Apr/2010

We recently held the first meeting of a Special Interest Group, to look for ways to improve Community Based Support (CBS) opportunties for people affected by stoma surgery.  There are many different types of CBS; for example local support group meetings, hospital open days, information days, or other events.

The premise of the meeting was that more people could benefit from CBS initiatives in their local area, and that the multiple stakeholders i.e. local support groups, nurses, companies and national patient organisations, should be able to plan collaborative methods of achieving this.

To start the group off 22 people involved in setting up, administering or promoting such activities discussed ideas to raise awareness of CBS activities, increase attendance, and make them more inclusive to marginalised groups.

The notes from the meeting can be downloaded here: SIG meeting flipchart notes

We will be exploring the ideas raised and seeking solutions to the problems identified; if anyone else would like to take part or can volunteer to help solve these problems – please get in touch!

Share

Coping with excessive demand vs limited funds

11/Apr/2010

Crikey, what a busy couple of weeks.  You realise the vulnerable nature of a small growing charity when the small things start to cause disproportionate levels of disruption.

Firstly a problem with the server. Although this is an excellent opportunity to test the organisation’s disaster recovery policies, and to learn some important lessons for the future, it cost a great deal of time for staff and volunteers alike, which would be much better spent supporting our beneficiaries.

Secondly, the impact of a key member of the team falling sick quickly escalates the burden and, as in the case of the IT problem, the remainder spend more time ‘coping’ with the regular workload.

The effect of these challenges?  Projects slow down, we struggle to meet the demand on the helpline services, cancel/rearrange important meetings and, dare I say it, lose valuable time that could also be spent raising funds for the charity. (more…)


Follow

Get every new post delivered to your Inbox.

Join 124 other followers